Thursday, July 21, 2016

EEG Results

We got a message from the neurologist yesterday saying that she had reviewed Allie's EEG and she wanted us to come in to her office to talk about the results.  She explained that the new EEG does not look any better than her May EEG and she wanted to talk about options.  We were in a hurry to hear what she had to say so Jonathan, Allie, and I went in this afternoon.

The neurologist spent the first 10 minutes of the appointment chatting with Allie and getting a feel for how she's doing.  She then asked Jonathan and me to go into a separate room to go over the EEG while Allie colored with the nurses.

She explained that Allie's EEG shows she's having focal electrographic seizures with no clinical correlation, which means that the left side of her brain looks like she's having a seizure based on the EEG but she shows no physical signs of having one.  The EEG was two hours of recording time and, unlike the May test, Allie was awake during a lot of it.  During this awake time, the neurologist counted 14 different 10-15 second long electrographic seizures.  While she was sleeping, she showed nearly continuous abnormal discharges.

She emphasized that she wants to treat the patient and not the EEG, and Allie is doing very well.  She proposed the following three options moving forward:
  • A 24-hour in-patient EEG to gather more data and engage Allie when she's having the electrographic seizures to see if they're limiting her ability to function,
  • A neuropsychology evaluation when she turns 6 years old to see if there are any areas she's struggling or falling behind, and 
  • An increased dose of her epilepsy medicine Trileptal.
Jonathan and I are on board with all of these, although I'm not looking forward to the 24-hour EEG after our last experience.

The neurologist noted that some people, especially those with strokes, have electrographic seizures their whole life and never show any physical indication of them.  Because Allie is doing so well, she doesn't want to try layering on new medications that could cause unintended side effects.  She also doesn't want to subject Allie to unnecessary interventions if the electrographic seizures aren't getting in her way.  So, we're going to gather some more information, watch her closely, and continue to hope for the best.

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