Jonathan and I are slacking. When Allie was first diagnosed, we were in a mad dash of therapies and doctors appointments. It seemed like our entire life revolved around Allie's cerebral palsy and epilepsy. But over the last few months, Allie has seemed just fine. She uses Righty, she walks around, and she is developing just like her friends at school. While all this normalcy is obviously fantastic, I've noticed that we seem to be doing less of the things that we are "supposed" to do. For example, Allie's PT wants her to do 5 laps up the stairs in our house while wearing a leg immobilizer on her left leg every day. It is important for Allie to strengthen her right leg to even out her walking. Still, it is a rare day that we get the 5 laps in. Why? It's not hard; we just have to do it.
Another example is Allie's followup Physical Medicine and Rehabilitation appointment. The PM&R doctor that we saw with her last Neurology appointment wants us to come in to do more of an evaluation to see if we should do Botox. But now a month has passed and we still haven't called to schedule the appointment. Why not?
Part of it is that we are busy with other things but I think most of it is that Allie is doing so well and it is really nice not to think about her disability all the time. In fact, there are days that go by when I don't think about it at all. I never thought it would be like that; I thought it would dominate every aspect of our life for a very long time. I used to worry about her ability to do the things that she wants to do and now I feel confident that she will figure out a way to do anything she wants to do.
We had some friends over yesterday and one of their kids is about a year older than Allie. The friend was walking around our backyard and putting little shiny rocks in a bucket. Allie wanted to too so she tried to hold the bucket in Righty and pick up the rocks with Lefty. The bucket kept tipping so she switched hands and carried the bucket with Lefty and picked up the rocks with Righty. She totally did it. I didn't have to intervene or help in any way. She just figured it out.
As Righty is becoming more integrated into her life, I feel can step back and breath. I just hope we don't let important things fall through the cracks because we're enjoying our peace.
Righty helping. I remember when this would have been a huge deal. Now, it's just Allie.