Wednesday, September 5, 2012

Flying Dada



Some may ask why Jonathan is leaping around in the window with pruning shears in his hand.  Somehow, this didn't seem strange at the time.

Aside from the obvious distraction in this video, check out Allie's right hand.  It's fisted, which isn't great, but it sure is moving around a bunch.  Her fisting varies quite a bit: some days she is super fisted and other days not at all.  Her physiatrist said that this variation suggests that Allie's muscle tightness is more like dystonia than spasticity.  

My understanding is that dystonia is characterized by tightness that typically comes with other physical movements.  Her physiatrist described it as her brain getting overloaded and mis-sending messages to her arm.  Spasticity, on the other hand, is tightness that stays regardless of what else is (or is not) going on. 

Lastly, I want to point out a term that I never thought much of and used quite often: "spaz".  Spaz is a reference to spasticity.  So, every time I told Jonathan (for example) to "stop being a spaz", I was referencing the disability of spasticity.  I don't feel great about that.

1 comment:

  1. These last two posts are hilarious. Jonathan is a STAR Dad for jumping endlessly to amuse Allie. Love it when she laughs. Great photography!!!

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